
Invisible Disabilities Advocacy Toolbox
This website was created by Emily Wisti & Pam Evans as part of an independent study
overseen by Dr. Lauren Moss
through Kutztown University's Counselor Education Program.
Fetal Alcohol Spectrum Disorder
Fetal Alcohol Spectrum Disorders: are a group of disorders that occur when a mother drank alcoholic beverages during her pregnancy, and the baby is exposed to alcohol prenatally. A person with a Fetal Alcohol Spectrum Disorder will have physical and neurodevelopmental problems.
Causes: when a women drinks alcohol during pregnancy.
Fetal Alcohol Spectrum Disorders descriptions:
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Fetal Alcohol Syndrome ( FAS): the most severe effects that a baby will experience when exposed to alcohol prenatally.
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Partial Fetal Alcohol Syndrome ( PFAS): the baby has an alcohol-related neurodevelopmental deficits, but does not have FAS disorders.
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Alcohol-Related Neurodevelopmental Disorder ( ARND): an individual may experience behavioral problems, and may have an intellectual disability.
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Alcohol-Related Birth Defects ( ARBD): the individual may have physical problems with their hearing, their heart, their kidneys, and/or a combination of all of these.
Common Populations Affected by the FASDs:
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The Fetal Alcohol Spectrum Disorders affects any baby/person who has been exposed to alcohol prenatally
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FASDs is depicted as one of the highest causes of developmental delays as well as mental retardation and birth defects.
Signs of Fetal Alcohol Spectrum Disorders:
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Primary ( after child is born exposed to alcohol)
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Facial abnormalities
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Small head
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Low birth weight and height
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Hyperactivity
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Attention/concentration problems
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Poor balance
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Language problems
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Poor social skills
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Sensory disturbances
Signs of Fetal Alcohol Spectrum Disorders: Secondary ( seen later in life):
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Mental health problems such as anxiety, depression, ADHD
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School problems
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Substance abuse
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Legal problems
Protective Factors: Helps diminish FASDs effects:
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Diagnosed before 6 years of age
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No exposure to violence
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Involvement with special education
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A stable and loving home
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Basic needs of the child are met
Treatment:
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Behavioral therapy
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Parental training and support groups on the FASDs to empower parents
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Early Intervention Services for child under 3 years old
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Special Education Services for child over 3 years old
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Close monitoring by child's’ pediatrician
Prevention:
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When a women drinks alcohol during her pregnancy, her baby drinks too.
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FASDs are all preventable when a women does not drink during pregnancy, even when she might get pregnant and she does not know yet that she is pregnant.
Resources in Berks County:
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Service, Access & Management: for mental health services, crisis and emergency care. Call: 610-236-0530.
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Greater Reading Mental Health Alliance (An affiliate of Mental Health America) : for support groups, education/information. Call: 610-775-3000.
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TASC: Treatment, Access & Services: for drug abuse and addiction information and treatment. Call: 610-375-4426.
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AA ( Alcoholics Anonymous) Reading-Berks Intergroup. Call 610-373-6500. Web site: "http://www.readingberksintergroup.org"
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COCA( Council on Chemical Abuse): Prevention and treatment resources for FASDs. Call 610-376-8669.
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BCIU ( Berks County Intermediate Unit): Free developmental screenings and special education services. Call: 610-987-2248.
Resources in Lehigh Valley:
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Services, Access & Management for mental health services, crisis, emergency care. Call 610-419-9102.
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National Alliance on Mental Illness( NAMI). Education, information for friends and family with mental illness. Call 610-882-2102.
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TASC: Treatment, Access & Services: for drug abuse and addiction information and treatment. Call 610-432-6760.
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AA( Alcoholics Anonymous): ABE Intergroup. Call 610-882-0550. Web site: "http://www.aalv.org"
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COCA( Counsel on Chemical Abuse): Early intervention services; outpatient treatment for those affected by substance abuse. Call 610-437-0801.
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Lehigh County Early Intervention: Early Intervention from birth to 5 years for children with special needs/developmental delays/disabilities. Call 610-782-3125.
Fetal Alcohol Spectrum Disorders Web Sites:
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www.nofas.org: National Organization on Fetal Alcohol Syndrome
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.http://www.fascenter.samhsa.gov: Substance abuse and mental health services.
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www.readingberksintergroup.org: AA meetings in Berks County
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www.aalv.org: AA meetings in the Lehigh Valley
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cdc.gov/ncbddd/fasd/facts.html: Facts about FASDs
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faslink.org: Information on FASDs.
Hotlines:
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911
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1-800-SUICIDE
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Reading Health System 24-hour Addictions Hotline: Call 484-628-8186.
References:
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Centers for Disease Control. ( 2015). Facts about FASDs.Retrieved March 26, 2017, from cdc.gov/ncbddd/fasd/facts.html.
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D. Michaud; V.Temple ( 2013). The complexities of caring for individuals with fetal alcohol spectrum disorder: The perspective of mothers. Journal on Developmental Disabilities,19(3),94-101.
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J.Pei; K.Denys; J.Hughes; & c. Rasmussen. ( 2011). Mental health issues in fetal alcohol spectrum disorder. Journal of Mental Health, 20 (5), 438-448.
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Wikipedia. ( 2017, March 16). Fetal alcohol spectrum disorder.Retrieved March 25, 2017 from https://en-wikipedia.org/wiki/fetal_alcohol_spectrum_disorder.
